After the top 10: bringing the community priorities to life

It’s been over a year since the final workshop of our neurodevelopmental disorder Priority Setting Partnership (PSP). This seminal moment marks the day when patients, family members, and front-line care providers came together and reached consensus on a top 10 list of research priorities for the research community. While all PSP initiatives culminate in a final workshop, we’ve been working hard to spread the word about the top 10 and address the community’s priorities. We have reached tens of thousands of people through media coverage, presentations, and social media promotion which has been greatly amplified by our partners. Continue reading “After the top 10: bringing the community priorities to life”

Big Data: What Does it Mean for Your Health?

Big data means many things to different people, but most agree that more data means better information leading to better decision making. Take Netflix as an example. It gathers tons of data from our watching habits and uses it to provide personalized recommendations and develop new content to improve the user experience. Healthcare is not Netflix, but can we borrow their approach to ensure that data is used more effectively to improve people’s experience? To start, we need to rethink how we collect and use research data. This is why the Ontario Brain Institute and our partners have developed our data platform called Brain-CODE.

Continue reading “Big Data: What Does it Mean for Your Health?”