Our health system requires that we ensure our research is relevant to the needs of patients and their families/caregivers, while empowering and supporting patients as partners. Indeed research ought to be the standard-of-care with the goal of continuous improvement. Partnerships in this virtuous cycle of improvement will generate increased knowledge and tools for self-management of health and lead to better quality evidence that reaches the community faster.
There is no question that the looming grey tsunami of the ageing population in Ontario has significant implications with regards to healthcare services. A key concept which is emerging is the opportunity to foster and maintain brain health across the lifespan where optimal performance and quality is sustained. While much focus has been on the attempts to intervene once brain disease has taken hold, progress has been slow.
No one likes to be defined by an illness, disorder or disability – even when we are a patient. Our ‘health’ is not only based on our biology, but also by our relationships with friends and family and our ability to do the things we enjoy. Researchers Drs. Peter Rosenbaum and Jan-Willem Gorter from our cerebral palsy research program (CP-NET) wrote a concept paper explaining how holistic thinking towards health can create a better framework to approach childhood disability. This framework helps to identify the ability and potential in persons with disabilities like cerebral palsy so people can work with them the same way we should with anyone else.
OBI celebrated Brain Awareness Week 2016 by featuring women involved in neuroscience – from basic science to advocacy. Watch interviews with Dr. Gillian Einstein, a neuroscientist and expert in sex differences in the brain; Dr. Jason Lerch, who dives into the importance of the looking at the female side of basic research; Dr. Pooja Viswanathan, an OBI Entrepreneur and creator of smart mobility devices; Judith John, a brain tumour survivor, healthcare advocate and communications professional; and Marcia Moffat, OBI’s Vice Chair of the Board and BlackRock executive.