Joining Global Discussions on Data Sharing

In OBI’s goal to improve brain health, research data are one of the basic building blocks.  Data are assets that hold value because they can be shared, analysed, and reused in different ways to support new discoveries and reduce the loss of resources. One opportunity to reuse data and uncover new insights is the linking of routinely collected population and healthcare data, or ‘broad’ data, with ‘deep’ research data (e.g., imaging, genetics, etc.).  To harness data’s full potential, OBI has developed several initiatives including an informatics platform, an international workshop, and internships to address linking and sharing data in new ways. Continue reading “Joining Global Discussions on Data Sharing”

Addressing Dementia Research And Care: Can ‘Big Data’ Help?

We live in a world of big data which can serve as a particularly useful tool for health systems to gain a better understanding of patients and their needs across large populations. With appropriate use, big data has the potential to advance health research and help healthcare providers personalize care; however, this has been largely unrealized because of the challenges associated with connecting, processing, and analyzing large data sets to produce meaningful conclusions. Continue reading “Addressing Dementia Research And Care: Can ‘Big Data’ Help?”

Brain-CODE embraces Privacy by Design (PbD) for a Win-Win Solution!

By: Ann Cavoukian, Ph.D.

Privacy by Design (PbD)

Privacy by Design (PbD) is a framework I developed in the ’90s to shift the conventional method of privacy protection from a reactive regulation and compliance model to a proactive preventative model. Fast forward to today – advances in technology have become faster and more robust; our lives seem to change month to month instead of year to year.  Accordingly, it is not only important, but imperative that individuals and organizations embed privacy proactively – making it the default. Continue reading “Brain-CODE embraces Privacy by Design (PbD) for a Win-Win Solution!”