Using A Patient-Centered Approach

 

Our health system requires that we ensure our research is relevant to the needs of patients and their families/caregivers, while empowering and supporting patients as partners.   Indeed research ought to be the standard-of-care with the goal of continuous improvement. Partnerships in this virtuous cycle of improvement will generate increased knowledge and tools for self-management of health and lead to better quality evidence that reaches the community faster.

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Sharing Caregiving Strategies to Address Risky Behaviour Changes in Dementia

Caring for someone with dementia is a long and challenging journey. Over the course of this disorder memory, cognitive function and other abilities deteriorate. Behaviour can also change over time in ways that are completely out of character for that person. For instance, the person with dementia may display aggressive behavior or get angry and act out. This can be very difficult as a caregiver and can lead to many questions. Is this typical? Is there something I can do to change this potentially risky behaviour? Getting these answers to caregivers is important for improving both care and safety in the home.

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Connecting Research Back to the Community

Ontario Brain Institute (OBI) believes connecting its research programs with patients and their advocates is critical to having relevant and high impact programs.

OBI has worked with each of its Integrated Discovery Programs (ID) to form five separate Patient Advisory Committees (PACs) that consist of advisors from various neurological health charities (e.g., Alzheimer Society of Ontario or Autism Ontario), researchers, caregivers, and patients. The purpose of these committees is to bring the patient voice to our ID Programs, promote knowledge exchange between patients, advocates, caregivers and researchers, discuss key issues for patients, and connect the research back to their communities faster. Continue reading “Connecting Research Back to the Community”

Building Networks Fundamental to Improving Health Impacts

Since the inception of Ontario Brain Institute (OBI) in 2010, we have been forging ahead with a singular mission – improve the lives of the over one million Ontarians living with a brain disorder.

OBI’s work focuses on three key areas: engaging patients in research; catalyzing evidence into practice and promoting a culture of evaluation. Through these efforts we are working alongside with communities and organizations to achieve a greater health impact than we could drive independently. Impact stories from each of the three areas help understand the rationale behind our approach and the results it has achieved thus far. Continue reading “Building Networks Fundamental to Improving Health Impacts”

Autism Across the Lifespan

What do you see when you think of autism? Up until recently, I would picture early intervention with children. But what happens once those children grow up? While early intervention and services for children are important, the needs of adults living with autism spectrum disorder (ASD) have gone somewhat unnoticed. Children with ASD grow up to be adults with ASD, and continue to have needs that require supports and services.
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Connecting Families With The Research Community

One of OBI’s major goals is to facilitate collaboration between patients and their advocates, researchers, clinicians, and industry to improve outcomes for those affected by neurodevelopmental disorders. One of the best ways to do this is simply to bring people together which is one of the reasons why OBI’s Integrated Discovery program, the Province of Ontario Neurodevelopmental Disorders (POND) Network, held a parent information day on May 3, 2014 to engage in dialogue with the parents and family members of children participating in POND.“I now know many of the researchers involved in POND very well. The day gave us insight into how they work together and share an interest in the POND network and POND philosophies,” explained Connie Putterman, a parent representative on the POND Patient Advisory Committee. Continue reading “Connecting Families With The Research Community”