Principles for Collective Research Acceleration

By: Suzanna Stevanoski, OBI Intern, Operations

Sharing data on a large-scale requires the creation of a highly sophisticated system, one that allows many researchers to connect, manage, protect, and standardize data. That’s why OBI is finding innovative ways to unite researchers in pooling their expertise and resources to achieve greater impact than they could have achieved in isolation. Continue reading “Principles for Collective Research Acceleration”

Joining Global Discussions on Data Sharing

In OBI’s goal to improve brain health, research data are one of the basic building blocks.  Data are assets that hold value because they can be shared, analysed, and reused in different ways to support new discoveries and reduce the loss of resources. One opportunity to reuse data and uncover new insights is the linking of routinely collected population and healthcare data, or ‘broad’ data, with ‘deep’ research data (e.g., imaging, genetics, etc.).  To harness data’s full potential, OBI has developed several initiatives including an informatics platform, an international workshop, and internships to address linking and sharing data in new ways. Continue reading “Joining Global Discussions on Data Sharing”

4 Things You Should Know About Brain-CODE

The wealth of information available in the modern world has given rise to the idea of ‘Big Data’. Massive amounts of data hold the potential to provide us with major insights. However, for this to be possible, data must be collected, analysed, and linked in the right way. When harnessed effectively, ‘Big Data’ may soon be able to give us big insight into what’s most relevant to an individual’s care. Continue reading “4 Things You Should Know About Brain-CODE”

Brain-CODE embraces Privacy by Design (PbD) for a Win-Win Solution!

By: Ann Cavoukian, Ph.D.

Privacy by Design (PbD)

Privacy by Design (PbD) is a framework I developed in the ’90s to shift the conventional method of privacy protection from a reactive regulation and compliance model to a proactive preventative model. Fast forward to today – advances in technology have become faster and more robust; our lives seem to change month to month instead of year to year.  Accordingly, it is not only important, but imperative that individuals and organizations embed privacy proactively – making it the default. Continue reading “Brain-CODE embraces Privacy by Design (PbD) for a Win-Win Solution!”