Severe brain injuries can dramatically alter the trajectory of someone’s life. Take the case of Michael, not his real name, who suffered from a severe brain injury as the result of a motor vehicle collision. His injury meant that he struggled with poor memory, impulsivity, dysarthria, chronic pain, emotional dysregulation, poor money management and many other problems.
With all the changes in his life he experienced a considerable amount of anxiety and depression. A physical altercation landed this individual in the court system, and that’s when the Ontario Brain Injury Association (OBIA) stepped in to help him and his legal team navigate the criminal justice system, which is not set up for individuals living with brain injuries.
Continue reading “OBI-GEEK – Brief Intensive Case Management – Acquired Brain Injury Ontario Brain Injury Association (Nipissing District)”
In OBI’s goal to improve brain health, research data are one of the basic building blocks. Data are assets that hold value because they can be shared, analysed, and reused in different ways to support new discoveries and reduce the loss of resources. One opportunity to reuse data and uncover new insights is the linking of routinely collected population and healthcare data, or ‘broad’ data, with ‘deep’ research data (e.g., imaging, genetics, etc.). To harness data’s full potential, OBI has developed several initiatives including an informatics platform, an international workshop, and internships to address linking and sharing data in new ways. Continue reading “Joining Global Discussions on Data Sharing”
We live in a world of big data which can serve as a particularly useful tool for health systems to gain a better understanding of patients and their needs across large populations. With appropriate use, big data has the potential to advance health research and help healthcare providers personalize care; however, this has been largely unrealized because of the challenges associated with connecting, processing, and analyzing large data sets to produce meaningful conclusions. Continue reading “Addressing Dementia Research And Care: Can ‘Big Data’ Help?”
By: Ann Cavoukian, Ph.D.
Privacy by Design (PbD)
Privacy by Design (PbD) is a framework I developed in the ’90s to shift the conventional method of privacy protection from a reactive regulation and compliance model to a proactive preventative model. Fast forward to today – advances in technology have become faster and more robust; our lives seem to change month to month instead of year to year. Accordingly, it is not only important, but imperative that individuals and organizations embed privacy proactively – making it the default. Continue reading “Brain-CODE embraces Privacy by Design (PbD) for a Win-Win Solution!”