Ontario Brain Institute (OBI) believes connecting its research programs with patients and their advocates is critical to having relevant and high impact programs.
OBI has worked with each of its Integrated Discovery Programs (ID) to form five separate Patient Advisory Committees (PACs) that consist of advisors from various neurological health charities (e.g., Alzheimer Society of Ontario or Autism Ontario), researchers, caregivers, and patients. The purpose of these committees is to bring the patient voice to our ID Programs, promote knowledge exchange between patients, advocates, caregivers and researchers, discuss key issues for patients, and connect the research back to their communities faster. Continue reading “Connecting Research Back to the Community”
Since the inception of Ontario Brain Institute (OBI) in 2010, we have been forging ahead with a singular mission – improve the lives of the over one million Ontarians living with a brain disorder.
OBI’s work focuses on three key areas: engaging patients in research; catalyzing evidence into practice and promoting a culture of evaluation. Through these efforts we are working alongside with communities and organizations to achieve a greater health impact than we could drive independently. Impact stories from each of the three areas help understand the rationale behind our approach and the results it has achieved thus far. Continue reading “Building Networks Fundamental to Improving Health Impacts”
Brain disorders affect one in three Ontarians and the direct cost to the province exceeds $4 billion each year. The indirect costs from work missed and the emotional costs for families are incalculable and create an urgency to address brain health by means of innovation and translational research that can improve the quality of life for people living with brain disorders. Continue reading “Enhancing the Neuroscience Research System through Strategic Collaborations”
OBI’s Integrated Discovery Programs bring together over 200 core researchers and clinicians, 35 institutions, 40 companies, and 20 patient advocacy groups from across Ontario.
Read about their latest news and progress in the updates that they have provided. Continue reading “Research Updates”
By: Martin Smith, OBI Intern, Outreach
The brain is complicated. After a century of research we are still making new discoveries every day. Our knowledge of how this organ works is limited because it is a network of highly-specialized cells and the network is always being rewired. Continue reading “Hitting A Bullseye Using Biomarkers”
By Meredith Bibbings, OBI Intern, Research
The most effective initiatives are responsive to the needs of those who stand to benefit from them. In research, this can mean understanding the patient, policy, commercialization, and care provider landscape. Continue reading “Patients’ Priorities: It’s A Very Good Place To Start”
OBI catalyzes the impact of brain research in Ontario by increasing collaboration among researchers, doctors, patients and their advocates, and industry partners. A key ingredient to collaboration is, of course, sharing. At OBI, a cornerstone of effective research collaboration involves sharing large quantities of data. In order for this to be done effectively, it must be stored somewhere where it can be accessed and analyzed collectively. Continue reading “International Data Linkages For New Possibilities In Autism Research”