Why Patient Engagement Matters in Improving Brain Health?

 

1. Lived experience offers valuable insight on what matters

“Being a part of OBI’s Patient Advisory Committee has provided me the opportunity to increase my own knowledge base while being able to share my opinions and thoughts – the ability to contribute a broader personal perspective, based on my lived experience and professional experience towards research projects” says Shelly LaForest. Shelly is a parent of three – two of whom have epilepsy, a practicing Registered Nurse at The Hospital for Sick Children and a member of OBI’s Data Access Committee and Community Advisory Committee (CAC) for EpLink. Continue reading “Why Patient Engagement Matters in Improving Brain Health?”

Care in the Digital Age

The shift from traditional in-person activities to the digital space brought on by the pandemic has been challenging, but this change gave us a new perspective on how we do our work. Simply by moving online, we’ve been able to reduce barriers to access and reach more people than ever before. Change doesn’t come easily, but despite the challenges we’ve faced along the way, we are poised to steer the future of brain health into the digital space by investing our energy and resources in the right places.

OBI is committed to supporting activities that either generate the evidence to improve care or lead to the development of products and services that improve health outcomes. We’re striving to improve the lives of people with brain disorders and moving to digital or virtual approaches makes it easier to reach the 1 in 3 Ontarians in the comfort of their homes. Over the last year, we’ve supported major efforts to address mental health challenges, better the delivery and experience of virtual care, and create new tools that can be used at home. Continue reading “Care in the Digital Age”

The Potential of Data Sharing: What Data Means for your Brain Health

“As the world has grappled with a global pandemic, we have faced much uncertainty and many challenges in our society and our economy. In dealing with these issues, however, we have also been presented with an opportunity – the chance to rethink outdated conventions and renew the way we do business as we rebuild our society,” Dr. Mona Nemer, Chief Science Advisor of Canada, spoke on how COVID-19 may serve as a catalyst for change in how we approach research.

It’s no surprise that in the aftermath of the pandemic, the calls for collaboration and open science have grown louder across the science and research community. Brain-CODE, OBI’s neuroinformatics platform is a strong example of how we can share data on a global scale, leading to improved care, while also protecting privacy and upholding consent. Continue reading “The Potential of Data Sharing: What Data Means for your Brain Health”

Four misconceptions around depression

“These are truly extraordinary times. We know that when people are experiencing something new and unfamiliar to them, it can cause many people to also experience stress and anxiety among other mental health challenges,” remarked the Hon. Michael Tibollo, Associate minister of Mental Health and Addictions. “These stressors become a lot for a person to manage on their own – even with the support of their family and friends.”

As Tibollo rightly pointed out, the COVID-19 pandemic has increased the concerns around brain health, making it more important than ever for mental health and wellness to be discussed more broadly. This offers people an opportunity to speak and share without fear of stigma and make use of tools and supports readily available to make informed decisions about their overall health in partnership with health care providers.

Here are four misconceptions experts would like to clarify, for you to better understand depression. Continue reading “Four misconceptions around depression”

Knowledge Translation – Bring lab to life

 

Do you recall the old adage, ‘sharing is caring’? We teach our kids the value of sharing because we believe it’s an important skill to develop. As we get older, the skill of sharing takes on new meanings, like cooperation or generosity, but the core concept remains unchanged; we give, and we get – it makes relationships and society work better. At OBI we encourage that our stakeholders share their research knowledge because we believe that, by sharing what we learn from research, we can empower people to better care for their brain health.

Continue reading “Knowledge Translation – Bring lab to life”

Trexo Robotics – Benefits during COVID – Meet Jacob

Jacob’s case study is quite an important one to share.

Jacob has a milder form of Cerebral Palsy, where he can walk by himself in a walker, but needed help in improving his gait. He also has some speech difficulties, but his cognition is perfectly fine. Jacob’s family got the Trexo in November 2019 hoping to see some benefits from it.

 

As soon as they started using the device, they started noticing improvements in his walking and overall strength and balance. Continue reading “Trexo Robotics – Benefits during COVID – Meet Jacob”

The Mind Series: Science Meets Psychedelics

Can psychedelic drugs help people living with anxiety, depression and post-traumatic stress disorder (PTSD)?

We explored this question at the first session of “Great Conversations: The Mind Series” in partnership with the Ontario Science Centre. “Science Meets Psychedelics” hosted by Dan Riskin, an evolutionary biologist and former TV co-host of Daily Planet, featured panelists Norman Farb, PhD, Associate Professor of Psychology at the University of Toronto and Anne Wagner, PhD, Clinical psychologist, Founder of Remedy and Adjunct Professor at Ryerson University.

Continue reading “The Mind Series: Science Meets Psychedelics”