Brain Health and Wellness
Technology, compassion, and collaboration: Advancing care for children with rare genetic disorders
July 17, 2025
“Research into gene therapy and epigenetic treatments is advancing. But to keep that progress going, we need better data-sharing, deeper testing protocols and a way to follow up with parents as discoveries are made. We need to close the gap between diagnosis and care.“ – Lloyd Rang, “Navigating the unknown: A parent’s perspective on rare […]