What do you see when you think of autism? Up until recently, I would picture early intervention with children. But what happens once those children grow up? While early intervention and services for children are important, the needs of adults living with autism spectrum disorder (ASD) have gone somewhat unnoticed. Children with ASD grow up to be adults with ASD, and continue to have needs that require supports and services.
Continue reading “Autism Across the Lifespan”
OBI’s Integrated Discovery programs focused on cerebral palsy, depression, epilepsy, neurodegenerative disorders, and neurodevelopmental disorders now bring together over 200 core researchers and clinicians, 35 institutions, 40 companies, and 18 patient advocacy groups from across Ontario. Continue reading “Updates from our Research Programs”
As a research institute dedicated to maximize Ontario’s neuroscience excellence, OBI has reached out across Ontario to connect scientists, clinicians, industry representatives and patient advocacy groups, who are focused on similar challenges. To better achieve their shared goals, five Integrated Discovery programs were established for cerebral palsy, depression, epilepsy, neurodegenerative disorders, and neurodevelopmental disorders. “Integrated Discovery” programs are research programs that bring together scientists, clinicians, industry representatives, and patient advocacy groups from across Ontario to foster integration across disciplines and pursue new questions. Continue reading “Updates From Our Research Programs”
One of OBI’s major goals is to facilitate collaboration between patients and their advocates, researchers, clinicians, and industry to improve outcomes for those affected by neurodevelopmental disorders. One of the best ways to do this is simply to bring people together which is one of the reasons why OBI’s Integrated Discovery program, the Province of Ontario Neurodevelopmental Disorders (POND) Network, held a parent information day on May 3, 2014 to engage in dialogue with the parents and family members of children participating in POND.“I now know many of the researchers involved in POND very well. The day gave us insight into how they work together and share an interest in the POND network and POND philosophies,” explained Connie Putterman, a parent representative on the POND Patient Advisory Committee. Continue reading “Connecting Families With The Research Community”
A key priority of OBI is amplifying the patient voice in research. To this end, OBI has helped establish five Patient Advisory Committees (PACs) which connect patients, their families and their advocates with people working at the frontier of brain research. Continue reading “Helping The Patient Be Heard”
The wealth of information available in the modern world has given rise to the idea of ‘Big Data’. Massive amounts of data hold the potential to provide us with major insights. However, for this to be possible, data must be collected, analysed, and linked in the right way. When harnessed effectively, ‘Big Data’ may soon be able to give us big insight into what’s most relevant to an individual’s care. Continue reading “4 Things You Should Know About Brain-CODE”
Researchers are focusing on the individual to gain deeper insight into the common, underlying causes of neurodevelopmental disorders. Continue reading “A personal touch to understanding neurodevelopmental disorders”